Health, Conditions and Diseases, Chronic Illness
- The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.
- Short explanation to counselors on defense mechanisms and coping styles of patients.
- British Columbia resources for physicians, patients and researchers. Includes success stories, reports, research and Chronic Care Model.
- Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
- Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
- Questions, concerns and links provided by Australian Palliative Care Council.
- Dealing with the child's resentment and embarrassment. The importance of key events and acknowledging the child's own health complaints.
- A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
- Advice for doctors and health workers on treatment and support of chronic ill patients. [PDF]
- Personal advice on making adjustments and maintaining hope.
- Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
- Handbook gives short, practical advice how to handle serious illness and dying.
- How to recognize depression and when to consult the doctor.
- Describes adjusting to illness in the family, with several personal articles.
- A personal account of strategies for daily living.
- Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
- Article explains how yoga helps to maintain and restore health by stretching and breathing.
- Patients, doctors and researchers discuss diseases: Gulf War Syndrome, Chronic Fatigue Syndrome, AIDS, biological and chemical weapons. Many articles.
- Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF]
- National Center on Caregiving offers fact sheets, advice, research reports, public policy briefs, and newsletters.
- British Columbia's patient information with links to programs.
- Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
- Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.
- Paper discusses core skills, use in educational programs, effects on health status, key ingredients for more efficacy.
- Background paper also proposes multi-partnered data base renewal (2003).
- Harvard Health Publication Letter. Patient oriented advice.
- Poem about coping with pain using relaxation and imagery.
- Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
- Personal articles concern this condition and others.
- Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
- Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
- Explains how lifestyle changes can be effective in self-managing a condition.
- Practical advice to patients and significant others.
- Seminar from The Pituitary Foundation's Third National Conference.
- A personal account of daily events aims to promote better understanding.
- The London Borough of Hackney offers support through council, community, and government agencies in the fields of jobs, leisure, transport and allowances.
- Advice to family members, including communication, financial matters, independence and taking charge.
- Short description of the day to day acceptance process.
- Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
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